Category Archives: Tet18p

Happy 18 Months Leo!

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Happy 18 months Leo (sorry I’m so late on this post)!  Leo weighs 21lbs 8 ounces, stretches 2 ft 8 ins, and has a head circumference of 48cm.  Leo had an appoointment with his neurologist, Dr. Lily (good name!) Tran, and she ordered an EEG scan to see how susceptible he is to getting seizures and seeing if any of his delays are due to that rather than just muscle tone issues.  She said he has low muscle tone but it’s not AS bad as we think, she said she’s seen a lot worse.  She also stated that since he hasn’t started pointing at things, he is showing signs of autism but we won’t really know until he’s 3 years old.  Also, he’s not hugging or giving kisses yet so she feels there’s also social delays, so he just needs to have more therapy to work on those developments.  He will have a follow up in 8 months and once insurance gives me authorization for his EEG, he will do that.  So I just have to wait for insurance to get the authorization for it so that i can make the appointment for that.  He also had his hearing test and did various tests and he’ll pass in certain ears in certain tests and then fail in others and so overall it’s inconclusive, so he will have to retake the test in a couple months.  If they still can’t get conclusive results, then they’ll have to put him under to do a more accurate brain wave activity test for his hearing.  Leo also had his GI appointment and she prescribed him medication to help increase his appetite, taken before bed on Mondays-Friday with breaks on the weekends.  He also needs to increase his milk intake since he only gained half a pound in that last 3 months and she feels he needs to gain more weight.  She said that if he doesn’t start eating solids by his 2nd birthday, then he will need to do an upper endoscopy where a camera goes down his esophagus to rule out eosinophilic esophagitis, reflux esophagitis or gastritis.  She wants to make sure that his food allergies isn’t causing any irritation in his esophagus that might make him turn away from eating solids.  Overall, Leo is so happy and is growing beautiful.  He is army crawling a lot faster and I feel like he will full on crawl soon!  He is clapping his hands a lot now and likes to squeal a lot too!  He really likes interactive toys, but he also likes the tv remote control and my hair haha.  Despite all his hardships, Leo is so happy, I cannot feel more lucky and blessed.  Happy 18 months my petite prince Leo!!!!

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Lily is a giant ball of sunshine!  She is so sweet and caring and super smart!  She has such a happy spirit and gets so excited about the little things, it melts my heart.  She is always so sweet and attentive to Leo, and understanding of him as well.  Lily is getting more excited about her Tajik karate classes and likes to demonstrate what she learns at school for me, and her gymnastics as well.  She likes to show me her punches and kicks and her tumbling skills!  I am also so proud of her at her LePort Christmas Show, where she actually sang most of the two songs!  She sang a snowman song and Jingle Bell Rock!  She told me Jingle Bell Rock is really hard but come the day of the show, she knew most of the words and sang proudly too!  I cannot be more proud of her!!  She is so artsy and crafty too.  I like seeing all her art projects that she does at school, and she’s getting pretty creative and more advance in her drawings too.  She’s going from rainbows and blobs to actual people and things now!  I can’t wait to spoil her this Christmas with so much holiday cheer!




Happy 17 Months Leo!

 

img_0137_2img_0941img_0963Happy 17 months my petite prince Leo!!  Leo weighs 21.5lbs, stretches 32inches long, and has a head circumference of 19.5inches.  Leo has a minor cold right now and has a stuff nose and it makes it difficult to drink his bottle but he learns to take breaks for air.  He still isn’t taking in solids but he did open his mouth a couple times with the OT when she tried to feed him some rice cereal, so that’s great progress.  Leo still can’t crawl but he’s getting better at tucking his legs under him and will rock back and forth, so he’s almost there!  He also is almost able to sit all the way up from laying down as well.  His core and legs are getting stronger each day.  He’s able to stand while supported now too!  I remember just a few months ago he was completely like jello or spaghetti when you would try to hold him up to stand.  Leo is such a fighter and I cannot be more proud of him!!  He is always so happy and smiling all the time.  He likes to squeal and babble a little bit too and he tends to say “mom” and “mama” but I’m not sure if it’s purposeful but it’s still something to be excited about anyways haha.  Leo likes to play with Sophie the giraffe, and likes to explore all different textures of objects.  He loves mirrors and like to look at his handsome cute face!  I love you so much my petite prince Leo!!  Happy 17 months old!

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lilyleport20162017Lily had had a very eventful month! She (and Leo) got to go to Mickeys Halloween Party at Disneyland where she had a total blast! I feel like she’s really enjoying it more now and loves all the amazing parades and fireworks show and the kid (Lily) friendly rides. Her favorite is It’s a Small World still and she remembers it from last year too! Of course she greatly enjoyed all the candy she as well and special thanks to Ann for making her super cute and awesome tote bag to carry all her trick or treats in! She also got to go to a local harvest carnival and play some games and enjoy some snacks and festive activities as well! For Halloween this year, her and Leo had a matching costume photo op where she was Rey and Leo was BB8 from Star Wars the Force Awakens! Thanks Skye for letting us borrow your costume! At her school Halloween parade, she was super excited to wear her Cinderella dress made by yours truly! She requested to have that dress made months ago and she’s so excited she can finally wear it and show it off to her friends. It makes me happy knowing she likes my stuff and it makes me feel like she’s proud of it especially when she wants to show her friends!  The kids also had a blast at the pumpkin patch with Skye and Summer as well!  They also went trick or treating with their cousins Aidan, Brooke and Cameron.  Lily did really well and if she got scared of a house, she just stuck back with Anh Hai Mike and waited for the kids to come back and continued onto the next house!  I’m so proud of you Lily!!  Lily is so smart, sweet, and loving, I love you so much my little Lily pad!!

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Happy 16 Months Leo!

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leooct2016leoexplorecupHappy sweet 16 months to my sweet little prince Leo (sorry for posting this so late Leo!)!  Leo weighs in at 20lbs and stretches about 31 inches long.  Leo is getting so much stronger each day and constantly making progress in his developments.  He had his GI appointment and the doctor prescribed him some medication to help with his chronic constipation.  She said that he needs to clean out his colon and he has to be on this medication everyday for about a year to get his system use to going number two once a day.  His colon is probably enlarged due to the constipation and holding it in for days at a time, so he needs to allow himself a lot of time to get his colon back down to a normal size. She thinks that maybe if he poops more regularly, maybe he won’t have a tummy ache (even though he doesn’t see to be fussy about it, maybe his tummy has been aching) and maybe this will cause him to want to eat and try solids.  Overall, the medication is working and he’s still not taking solids, but it’s going to be a process.  The OT said she’s never met any non g-tube that’s be this orally defensive before.  I hope you start to learn to eat solids soon Leo because food is SO enjoyable haha!  Leo did have a great accomplishment though and that he’s starting to hold his own bottle during feedings!  He’s not confident yet, it’s more like me propping his hands up and holding his hands in place, but it sets the motion and he would hold it for a minute or two by himself, and sometimes he’ll even tip the bottle up himself to get the last of the milk as well!  He is also tucking his legs under him more when he’s on the floor on his tummy, and he’ll rock back and forth sometimes in that position too.  It seems like he’s really wanting to crawl soon, fingers crossed!!  He’s also getting stronger at standing.  Sometimes he’ll pull himself upright but he still needs a lot of assistance and support when standing, and he’s still pretty stiff, but he’s improved a lot just in this last month.  The two PT sessions a week now really helps!  He also does this ridiculously cute thing where he’ll put his arm up and his hand on his forehead whenever he’s tired or doesn’t like something, and if he really doesn’t like something then he’ll pout, but it’s just so super cute I cannot resist his doe eyes when he does it!  All his baby steps are huge leaps in my eyes and I cannot be more proud of my petite prince Leo!

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lilyflowerlilyleportoct2016Lily just so bright and sweet as ever!  Lily is learning a lot at LePort and even though her Spanish class isn’t offered this quarter, she is still reciting numbers and words she learned and is very proud of it!  She is always super silly and likes to use her giant imagination and create lots of elaborate stories during playtime.  She is very loving and sweet to Leo still and still continues to give him lots of hugs and kisses and is still so good at making him laugh and smile.  She also had a recent school field to Zoomars Petting Zoo in San Juan Capistrano for the first time and she had such a blast!  She loves riding the school bus and she really enjoyed all the animals!  She liked feeding all the guinea pigs, goats, and pigs, and she even got to brush a goat’s fur.  She also conquered her fear of horses/ponies and rode on a horse with no tears at all!  I am so proud of her and she even had so much fun and waves hello to me several times during the ride.  There was giant corn kernel pit at the zoo too and she loved making corn angels in it haha.  Lily really likes songs on the radio and is singing along to them more, I love her sweet soft little voice!  She still has a slight accent when she says certain words, it’s pretty cute and unique haha.  I don’t know where she gets it from…but it’s cute regardless!  She’s so silly and always bursting with so much sunshine and happiness, you just help but smile and love her even more.  I love you so much my precious princess, my Lily pad!  Keep on shining oh so bright!!


Happy 13 Months Leo!

Leo13MonthsLeoDrZedah2016Happy 13 months old my little Prince Leo!  Leo weighs 19.51lbs, stretches 29.72 inches long, and head circumference measures at 17.9 inches. We just had his annual visit with his geneticist and she is confident that he would be able to walk one day, without the aid of any medical equipment, so that’s great news!  He will need to have another hearing test since his right ear canal seems to be very narrow.  He needs to check to make sure there’s no seroma in there or else that could block his whole ear canal which would make him not able to hear.  We also need to schedule an appointment with an ophthalmologist to make sure his eyes are ok so that it doesn’t contribute to his balance and focus, in case one eye is near sighted and the other is farsighted or something, etc.  Overall, the geneticist says Leo is about the age of a 7 month old in terms of physical development.  She said we won’t know how mentally developed he is until he starts speaking and seeing how he communicates with us.

Leo13Months (3) Leo13Months (2)Leo is so mellow and happy and full of curiosity.  Leo still isn’t taking any solids, so we are still working with the occupational therapist for that, but he is now drinking whole milk and we are trying to introduce the straw to him.  I’m hoping that he will eventually learn to drink from the straw so that he can at least take smoothies to get some food content in him, if it takes a while for him to take solids.  Leo can sit well on his own when he props himself.  He is not crawling, standing or pulling himself up yet, but he is very good at rolling around and having lots of arm movements and kicking of his feet.  Leo is also very ticklish and also loves being tossed in the air and hanging upside down haha.  He is also getting better at reaching for toys, and playing with toys and my hair.  He also seems to sign for milk now, but it could also be a coincidence, but it’s exciting regardless!  He’s also being more social and doesn’t like to be left alone as much now, and likes to be held and interacted with.  I’m glad he’s being social and he is just a great ball of sunshine to have.  Overall though, Leo is growing strong and doing it all with the cutest smile on his face!  Happy 13 months old my sweet little Leo!Leo13Months (1) Leo13Months (4) LilyLeo4thOfJuly2016

LilyJuly2016 (2)LilyJuly2016 (1)Lily has such a cute spunky little personality that I just can’t ever get enough of.  I’m constantly being impressed with lily’s thought process and communication skills.  Lily is getting more proficient with the iPad since I have physical therapy twice a week, so she’s been pretty good at being independent and learning how to navigate on her own.   Lily is very silly and loves to have fun and laugh.  Lily is still always so sweet and loving to Leo, she’s such an amazing big sister!  I’m very proud of her!  Lily really likes to play new board games, draw and work with stencil works.  She really likes to write her name and is starting to write out more words like all our names.  Lily knows it’s my birthday soon so all of her art work at school is “for mommy’s birthday” haha.  She’s so sweet!  She loves arts and crafts, and also playing with her scooter and car outside.  Lily also likes to play with bubbles and fireworks now too.  Lily also loves wearing dresses, wearing flowers in her hair, picking flowers, and eating all kinds of ice cream (also known as yogurt haha).  Yogurt and ice cream is pretty much the same thing to her, so that’s a nice little trick I was able to do and not feel so guilty about doing =P.  Lily also had the pleasure of being in Lennie and Danny’s wedding last month as a pretty little flower girl!!  Lily’s such a bright light in my life, her smile just lifts up my spirit and I can’t help but feel so happy when I’m in her presence.  I’m so proud to call her mine.  I love you to pieces my beautiful lily pad!

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Enjoy a couple videos of the kiddoes below!


Happy 1st Birthday Prince Leo!

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LeoLilysSunglassesHappy 1st Birthday to my dearest le petit Prince Leo!  Leo weighs in at 19.65lbs (21%), stretches 30 inches long (56%), and head circumference is 17.5 inches (22%).  At his 1 year check up, he got a finger prick and his iron level was a little bit low, so he is now going to start taking poly-vi-sol vitamins with iron in it once a day.  Leo got 3 shots and cried his eyes out but took them like a champ and calmed down shortly after.  It’s also so painful to watch, but it’s for his health and he luckily didn’t have any fevers or anything afterwards.  Leo’s PT and pediatrician noticed some of hypertension in Leo’s legs and arms, and so Leo will be getting a full neuro evaluation and an MRI scan to see what’s going on, and if there’s anything in the brain that’s preventing him from achieving certain developmental milestones.  If the brain looks good, then it’s just a matter of working with Leo to strengthen his muscles and train his mind to get him to develop.  If something is going on neurologically, then we will have to go with a different approach, I’m not sure what that would be yet.

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Leo1stHaircutLeo1stHaircutCertificateThe pediatrician said he’ll probably need speech therapy later on, and I talked to his PT and usually that would start around 18 months of age.  There was mention with his PT that they might add an Infant Educator back onto his early start program, but I said if he doesn’t really need it, I’d rather not because 3 hours of therapy is a lot for the little guy, and an infant educator is more broad and not necessarily specific for any particular development.  So he might not have to add another hour of therapy to his already busy schedule.  Leo also had to do an allergy blood test and I found out that Leo has a severe allergy to eggs, egg whites in particular.  His doctor said if he gets in contact with it, I can use Benadryl to help the allergy reaction, otherwise, we will be to have an epi pen on hand just in case he gets an accident and he reacts badly.  We noticed that Leo’s skin will turn red just from touching things that had eggs in it, so it’s sad that this is confirmed, since eggs are so yummy and are in sooo many yummy foods.  However, it’s good to know now so that we can keep him safe and healthy!  He is also allergic to nuts, particular peanuts and cashews.  Poor baby Leo. He will learn to enjoy other foods though (once he starts learning to eat).  Leo also got his first haircut a few weeks ago and was so cute and super ticklish too.  He looks like a little boy now, where did my baby go???

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I threw the kids a nice birthday party to celebrate Leo’s milestone 1st Birthday and Lily’s 4th Birthday!  I baked vanilla, pistachio, chocolate, and orange blossom macarons, bavarian cream fruit custard, and Haupia cupcakes with a coconut filling.  I also made a nice big 3 tier display cake in the theme of the book Le Petit Prince by Antoine de Saint-Exupéry.  I hired a very talented balloon artist and face painter, and Khoa’s coworker, Vinh, generously set up a photobooth for us as well.  I got catering from Newport Rib Company and had a lot of yummy BBQ as well.  It was a very fun party and this 1st birthday means so much to me. For more pictures of Leo and Lily’s Birthday celebrations, click HERE!

Leo1stBday (2)Happy 1st Birthday my dearest prince Leo.  You are such an amazing little inspiration.  There was a time when I thought I wouldn’t even be able to hold him in my arms, to see his beautiful smile, or hear his sweet laugh. Yet here we are, it’s been a crazy long journey, from the moment you existed, and now, we celebrate you. My little prince Leo, you are such an amazing little fighter, inspiration, and miracle.  I look at your sweet face, your cute sweet smile, and your innocent pure eyes, and I just can’t help get emotional and overwhelmed with feelings of love and gratitude.  I love how I can just hold your hand, with your tiny fingers wrapped around mine, and you just feel safe and at ease with me.  You feel like home and the ultimate sensation of comfort when you are in my arms, and I never want to let you go (except maybe when I have to pee…).  I can stare at you  explore this world of all it’s wonders, and listen to your sweet little voice all day!  You are truly the definition of hope.  You are beating all the odds, and I can’t wait to see what adventures we will continue to go on together. Keep shining bright, keep fighting, keep being my ray of hope. I love you to pieces Leo!

Check out some of Leo’s adventure from his first year of life along with his first haircut experience!


Happy 11 Months Leo!

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Leo 11 Months

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Leo 47 Wks

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Leo 46 Wks

Happy 11 Months old Leo!  I can’t believe this is your last month before you turn 1 years old!  Leo weighs in at 19.2lbs and stretches about 29 inches long!  He is still such a happy mellow calm baby, and is always a joy to be around.  Earlier Leo had a really bad stuffy and runny nose that lasted a little over a week, so that was really rough on him (and me), but he managed to stay in good spirits most of the time though.  The only time he was really showing any misery was when he would try to drink his bottle and his nose would be so stuff he couldn’t breathe, and then throw up all his milk a couple times too, so he would cry pretty hard, poor baby =(.  I’m glad he’s all better now and and breathe a-ok!  Leo really likes to look at himself in the mirror and always has a big smile on his face when he sees the handsome little guy smiling back at him.  Leo is still a very good sleeper and takes to take a couple long naps a day and then do a good 12-14 hour stretch of sleep at night!  Good job Leo!!

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Leo 45 Wks

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Leo 48 Wks

He likes to roll all over the place and kick his feet like crazy.  He really wants to move around, and I feel like he really wants to crawl, it’s just a matter of getting his core muscles and arm muscle tones strong enough so he can do it.  Practice practice practice.  Leo still hasn’t made much progress in terms of eating solids, but he’s getting more use to the zvibe tool.  Hopefully his mouth muscles will loosen up and as his core muscle strengthens, hopefully everything else will fall into place.  For now, I’ve been trying to feed him homemade pureed pees and black beans, but so far he still pushes the food out and doesn’t eat.  We just have to keep on working at it.  Also, his physical therapist suggests we get Leo to do a brain scan, so see if there’s anything going on neurologically that’s preventing him from achieving certain gross motor skills.  He tends to hyper extend his arms and extend them backwards rather than pulling his arms forward for balance.  She thinks it could be neurological, so I’m going to set up an appointment to get him scanned just to make sure.  This worries me of course, but it’s better safe than sorry, and better to know more so we can prepare and work with what we know.  Overall though, Leo is improving on his sitting, he’s able to sit tripod style for about 5 minutes on his own now.  His side sitting is getting better too and I can let go for maybe 15-30 seconds or so before he starts to tip over.  He is babbling a lot more and says “mmm” a lot, I’m pretty sure he’s trying to say “mama” =).   The physical therapist also tried some musical therapy to help him concentrate during therapy.  Sometimes he’ll try to resist and fight her, and so she played some therapeutic rhythmic drumming music, and it instantly calmed him  down, and he was able to do the task at hand, and even sit up on a box all by himself for about a minute!!  Plus, doesn’t he look so cute with those headphones?  So now I will add 30 minutes of rhythmic music to his daily therapy, it’s suppose to help the brain develop too.  Overall, he is making baby step progresses, which is also good.  The therapist said, once he learns a skill, he can’t regress, so it’s just a constant forward moving action, so that’s very encourage.  Keep it up my little prince, mommy is so proud of you!!  I love you to pieces!!

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Lily doing Private Penguin Pose

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Lily chopping apples for salad

Lily is so wonderful, spunky, sassy, smart, funny, and amazing.  She continues to shower her baby brother with love and attention and likes to keep an eye on him for me when I need to shower or do things around the house.  She is also my little sous chef, and loves to help me chop whisk and prep for dinner.  She really likes to go shopping now and would always pick something out for me and then look for something for herself.  She is a addicted to candy, she has a major sweets tooth, got that in her blood from her mommy…haha.  She really likes to eat fish, shrimp, cheese, bread, eggs, tofu, noodles, broccoli, peas, string beans, carrots, and steak!  She loves to snack on potato chips, cheesy popcorn (Pirate’s Booty), and peanuts.  Lily also went to the dentist this past weekend and actually let the dentist count and check her teeth for the first time, and she did so well!  When he asked her to open her mouth bigger, she listened and did it, so good Lily!  No tears or anything!  She has 10 teeth on top and 10 teeth on the bottom, and he said they all look straight and good!  Woohoo, good job Lily!  Amazing too since she eats sooo much candy!  Lily loves to help me water the plants and plant succulents in my balcony garden, and she also likes to help Leo read books.  She even grabbed his hand to help him feel the textures on the pages and help him turn the page all on her own too, because she sees me doing it, so she does it now too.  It’s so sweet and heart warming to see her do those things!  I’m so proud of you Lily, I love you soooo much!  You light up my life, I cannot be more lucky to have you at my baby girl!!

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Trying on hats at the mall

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Lily makes all sorts of chocolates!

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Lily helping Leo feel the textures on the book.

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Lily with her best friend Zoey putting soil into reusable k-cups at school!

Check out some videos of Leo!



Happy 10 Months Leo!

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Leo 10 Months

LeoBookHappy 10 Months my petit prince Leo!  Leo now weighs about 18bs, and stretches about 29 inches long!  Leo had his follow up check with his urologist a few weeks ago and overall everything looks good.  He said to massage the two incision spots on his belly 30 second rotations each way every time he gets a diaper change and the scar should go away!  He has to come back in a year for another follow up, so hopefully everything stay good and healthy.  Leo is starting to play with his toes more now and he loves to roll all over the place.  He is holding onto his toys a little longer and really likes to play with crinkly texture toys.  His top two teeth are very visible now so his teeth count is at a whopping 4!  He’s starting to drool more now because of all his teething.  When Leo starts to suck his thumb, that’s a sign that he’s getting tired and sleepy, it’s really cute!  He’ll rub his eyes and them use his arm to cover his eyes and fall asleep that way.  He is being more vocal now too and making lots of different noises.  He likes to blow raspberries now and is beginning to lick things and slowly put things in his mouth, mostly his bibs.  Leo also really enjoys books and on a few occasions he was even able to turn the page all by himself!  He is very curious and loves to observe his surrounds.  Leo has a sweet gaze and will entrance with his beautiful eyes and sweet little smile.  Big sister Lily is still the best at making him laugh, but he is always so happy and smiling, he is literally a bundle of joy!

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Leo 34 Weeks

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Leo Easter 2016

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Leo 41 Weeks

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Leo’s 1st St Patrick’s Day

Leo had his 6 month assessment from the infant education program a few weeks ago.  I was actually a little surprised by how delayed he was in a lot of areas, I thought he was just a little bit behind in some gross motor skills but I didn’t realize he was delayed in other areas as well.  The assessment stated that Leo’s delays are attributed to a couple neuromotor factors such as low tone and decreased strength.  It was reccommended that his schedule gets changed to 3 hours of therapy a week instead of 1 hour a week, where it’s 1 hour for PT, 1 hour for OT, and 1 hour with his infant educator.  The Regional Center decided to go with 2 hours of therapy, 1 hour PT and 1 hour OT and forego the infant educator for now.  When I first saw the results to Leo’s assessment, I was surprised by the numbers and felt bummed, scared and worried for my Leo.  I think it’s a normal reaction, since I don’t want Leo be too delayed, if at all, but after some time to process all the information, and understand the questions and tests that were involved in order to do the assessment in the first place, I wasn’t as worried anymore.  I can’t get caught up in the statistics and numbers, I have to look at what’s right in front of me, and look at this from a different perspective.  Leo isn’t struggling, yes he is delayed, but he isn’t struggling, he is healthy, and most of all, he is happy.  Leo has his own journey that he is living and he is living it wonderfully.  He will crawl, stand, and walk, when the time is right for him; he will talk and eat when he is ready to do so, and he will continue to grow and develop the best he can, and that’s all I can ask and be grateful for.   Leo is my little miracle, and every day with him, every moment, every milestone, is more than a dream come true.  I want the very best for him, but he is already the very best son for me!

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Leo with PT Kerry

Leo started his first Physical Therapy session with his new therapist Kerry on Monday. I really like Kerry, she has a lot more activities and exercises that we can do with Leo at target and strengthen his core muscles.  She really put Leo to work and he didn’t really like it, poor baby, and even started to cry!  Leo hardly ever cries so it was really sad but funny and cute to see at the same time.  His bottom lip in his pout is just way too cute, I couldn’t resist and have to show you all haha.  It’s all good for him though, so he will thank her later!!  It was a very helpful first session and I feel like as long as Leo keeps at it, he will probably make a lot of progress real faster!  Kerry was very motivated as well to get Leo to reach his milestone goals, so that was very encouraging to see.  Behind those tears and pouty face, I think Leo really liked Kerry though because right off the bat he impressed us all by sitting unassisted for what probably felt like 2 minutes!!

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Leo chilling side sitting style

Normally he’s done maybe 30 seconds or less because he would get so excited and want to move around and he’ll lose his balance, but in front of Kerry, he just sat so stable and straight, it was amazing!!  You are still doing really great Leo.  Don’t let numbers and statistics dictate what you are capable of.  You will push boundaries and achieve great goals for yourself, and you can do anything you put your mind to.  I have faith in you my little Leo, you already make me so proud, and I know you will always be my beacon of hope and my bright light!  I love you so much Leo!!

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LeoLazy

“I’d rather lay like this than practice sitting.” – Leo

LeoOTChristineLeo had his first occupational therapy session today with his new therapist Christine.  She was really nice and really good with Leo.  We didn’t deal too much with feeding today, more of just physical therapy so that Leo can build a relationship and trust with her.  While playing through therapy, she’ll occasionally touch his mouth and face to get him to get use to her touching his mouth, so later when she works with loosening his mouth and cheek muscles, he won’t be too closed off to it.  She said later one when he does start to eat, to let him be messy and explore his food, let him feel the texture with his hands, smell the aroma, point out all the different colors in his food, and then let him taste it and really exaggerate how good it taste.  It’s all part of the experience of eating and she said to make the process fun for him.  She seems very knowledgeable and I feel like Leo is in great hands!!

Also, Lily is so wonderfully amazing.  Lily had her Children’s Night at LePort recently and once again I’m also so blown away by all that she can do.  I’m very impressed with her beginning writing skills, her starting to sound out letters and trace in cursive, her dexterity with level of focus and concentration with her work too.  It’s really great to see her so confident in the classroom and excited and happy to do her work and show off her skills.  I’m so proud of her in every way, I can’t believe that beautiful smart silly funny little baby girl is all mine.  Lily also had a field trip to the Discovery Science Center and I think one of her favorite part about field trips is being able to ride the school bus.  Every time she sees one she gets super excited!  I got to go with her on her field trip and it’s very nice how empty it was and it felt private and so Lily didn’t really have to wait to do anything she wanted, she got to roam free and do whatever her mind was curious about.  Her favorite was this recycle game that they had on the second floor, she must have spent half an hour there!  You can view pictures from her field trip to the Discovery Science Center HERE.  I love you so much my Lily pad!! Check out this video of Lily at her Children’s Night at LePort back in March.

LilySmoothieLilyWriting1Lily continues to be such an amazing big sister to Leo as well.  She’s still constantly so loving and caring towards Leo, always wanting to give him kisses and play with him and making him laugh, she’s still the best one at making him laugh.  He loves her so much too and every time he sees her he loves to just watch her and gives her the biggest smile.  Lily is always so happy and silly, she lights up my life.  She still likes to be very helpful and likes to do a lot of things herself.  She even helps me out with cooking now too, from cracking and stirring eggs, chopping fruits and veggies, to watering plants.  She’s my little sous chef, my little personal assistant, my partner in crime.   She really likes music and loves to sing and even makes requests to hear certain songs.  Whenever a song comes on the radio that she likes, she would ask me what song it is if she doesn’t know it, or tell me that she likes this one.  She also enjoys watching a lot of movies and shows on netflix, I recently took her to watch Zootopia and she loved it and watched it many times after that (handicam version at home haha).  She said she loves the song in it and would watch the music video over and over.  Lily also enjoys coloring and drawing, she’s very good at writing her name, and she likes to cut and glue paper, the Kiwi Crates are still a big hit with her!  I like them too since it’s a great way to have bonding activity time with her that’s also educational and fun.  Lily loves to play pretend food prep for me as well and play with little random knick knacks, stick them in her purse, take it out, and put it back in, and repeat haha.  She has a very big imagination, is very observant, smart, and intuitive.  I love you so much Lily, you are always making me proud and happy, I’m a very lucky mommy!!

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Leo watches Lily go down the slide!

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Lily & Leo Easter 2016

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Lily Easter 2016

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Lily 1st Day of Spring 2016

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LIly St. Patrick’s Day 2016

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Lily & Leo St. Patrick’s Day 2016

Time for some video fun of the kiddos, enjoy!