Monthly Archives: May 2016

Mother’s Day 2016

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Happy Mother’s Day to all the amazing mommies out there!  Being a mom is definitely one of the hardest jobs I have, but it’s also the most rewarding and humbling experience that I have the chance and honor of experiencing.  Life has been very challenging and difficult lately, and a lot of times, it’s very easy to feel defeated, diminish my self esteem, have self doubt, and lose hope.  Sometimes the dark clouds roll in and the storm hits, and you just don’t know when the sun will come back again, and it’s hard amd very scary to brave the thunder and lightning due to the risk of getting hit or blown away.  Sometimes, I just want to throw my hands up in the air (like you just don’t care..jk..) and give up and just accept that personal happiness is something that wasn’t meant for me.  When you become a parent, you sacrifice a lot of yourself for your children, and we often think that as long as they are happy, you are happy.  That’s only true up to a certain point.  In the end, we are still our own person, and if we ourselves are not happy, deep down in our soul, then how can we possibly be the best we can be for them?  There’s a difference between sacrificing for the better of our children and completely losing yourself in your children.  I think it’s very important to still be your own self, and have your own life, outside your kids.  There needs to be a healthy balance, so that your kids not only see you as their loving parent, but also as a loving person, that would hopefully inspire them to be one day.  One day, my kids will grow up and leave the nest, and create their own families, and I don’t want to be lost when that happens.

We face many difficult challenges in our lives, and are dealt with many difficult decisions to make as well.  What I do to try to get past those obstacles that life throws at me, is to just think about what kind of person I want Lily to be, what kind of man I want Leo to be, and make my decisions based on that.  Lead by example.  If I want Lily to be kind, generous, forgiving, patient, and compassionate, then I will be all those things for her so she can witness it and experience it, as her norm.  Parenting is a constant battle of patience and testing of the emotions.  You have to pick and choose your battles, and ask yourself what do you value more, what’s the lesson you’re trying to teach, what do you want to achieve?  I’m no expert, nor am I a perfect parents, but I feel it’s a series of trial and error really haha.  So I just have to trust my gut instincts, and hope for the best… Anyways, with everything going on in my life, it’s hard to stay confident in myself.  You never know if you’re doing a good job, or the right thing, or doing what’s best for your kids and yourself.  However, I’ll look at Lily, and notice the little things she does, her occasion head lean on my shoulder, and hugs and kisses for no reason, and just look at what a kind, compassionate, caring, polite person she is, and that gives me validation that I’m doing something right.  When things were getting really hard for me a month or so ago, I got this random message from a stranger who stumbled upon my blog.  Below was her first message to me, and then a snippet of an ongoing conversation I had with her via email.

“I just want to thank you for your blog that you post about your son leo. My son also has tetrasomy 18 and i read your blog for motivation to get me through my pregnancy. It gave me hope that my son would make it and that he would be okay. He is now 3 months old and he is doing great and you inspired me to continue on with my pregnancy when the doctors told me he would never make it. 🙂 thank you”

“I think your a hero for choosing to keep Leo and writing about it . . . I am so glad i didn’t listen to the doctor and abort him because he is perfect to me . . . If it wasnt for god & his fathers faith that everything would be okay and with out your blog i might not have had Angel.”

I immediately bursted into tears when I read her message.  It was like my soul was revitalized, reenergized, and I had validation from a complete stranger, to keep on being me. I felt incredibly humbled by her words, and it just felt really…good, and amazing, to know that I was able to help someone, and even save a baby’s life.  Who knows if I’ve helped anyone else that hasn’t even reached out to me, but wow…I was floored and so happy, that I was able to actually make a difference.  I really genuinely want to help people, and I’m so glad that I’m able to with my blog, and documenting my life journey, as well as Leo’s.  This gave me a lot of my confidence back, and encouraged me that I’m doing the best I can right now, and to keep on at it.  I also received a care package in the mail from a friend, thanking me for all my advice that I gave her last year, when she just had her newborn and things were really hard for her.  I was again hunbled by her kind words, and didn’t realize how much I’ve affected her and helped her.  I feel very happy that I was able to help and make such an impact in her life.  I believe in good karma, and so I will continue to spread the love and care into the world, and hope that this world will be a better place for my kids and myself, because I can make a difference, and you can too!  Sounds like a promo ad, but it’s true!

So whatever happens in life, you just have to be true to yourself, and just try to be the best version of yourself possible.  I live my life for my kids, but also for myself.  I’m the one who has to walk in my shoes, and so I’m the one who has to live with myself.  If I’m not happy with who I am, then I try to make myself better so that I am happy, and my happiness, will be reflected on my kids.  If your life is dark and miserable, that shadow will cast upon your kids as well, so let the light shine bright and guide you.  Kids will bring you so much joy, pain, happiness, anger, frustration, but most of all, love.  As for my babies whom I never got to hold, I live the best life I can for them.  I can’t teach them anything, or inspire them, or take care of them, because they are already in heaven and don’t need any of that from me.  They are the ones who’s actually watching over me, taking care of me, and inspiring me.  So as their mother, I plan to be happy, and be a good person, for them, to make them proud.  Thank you everyone for all the well wishes, flowers, sweet treats, jewelry, and gifts.  I’m definitely the lucky one to have such amazing kids.  Happy Mother’s Day to all the mommies out there. <3

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Leo’s not suffering I swear

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Leo’s getting use to Lily’s love…haha

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Mommy and Lily selfie!

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Mommy with my pride and joys

Happy 11 Months Leo!

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Leo 11 Months

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Leo 47 Wks

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Leo 46 Wks

Happy 11 Months old Leo!  I can’t believe this is your last month before you turn 1 years old!  Leo weighs in at 19.2lbs and stretches about 29 inches long!  He is still such a happy mellow calm baby, and is always a joy to be around.  Earlier Leo had a really bad stuffy and runny nose that lasted a little over a week, so that was really rough on him (and me), but he managed to stay in good spirits most of the time though.  The only time he was really showing any misery was when he would try to drink his bottle and his nose would be so stuff he couldn’t breathe, and then throw up all his milk a couple times too, so he would cry pretty hard, poor baby =(.  I’m glad he’s all better now and and breathe a-ok!  Leo really likes to look at himself in the mirror and always has a big smile on his face when he sees the handsome little guy smiling back at him.  Leo is still a very good sleeper and takes to take a couple long naps a day and then do a good 12-14 hour stretch of sleep at night!  Good job Leo!!

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Leo 45 Wks

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Leo 48 Wks

He likes to roll all over the place and kick his feet like crazy.  He really wants to move around, and I feel like he really wants to crawl, it’s just a matter of getting his core muscles and arm muscle tones strong enough so he can do it.  Practice practice practice.  Leo still hasn’t made much progress in terms of eating solids, but he’s getting more use to the zvibe tool.  Hopefully his mouth muscles will loosen up and as his core muscle strengthens, hopefully everything else will fall into place.  For now, I’ve been trying to feed him homemade pureed pees and black beans, but so far he still pushes the food out and doesn’t eat.  We just have to keep on working at it.  Also, his physical therapist suggests we get Leo to do a brain scan, so see if there’s anything going on neurologically that’s preventing him from achieving certain gross motor skills.  He tends to hyper extend his arms and extend them backwards rather than pulling his arms forward for balance.  She thinks it could be neurological, so I’m going to set up an appointment to get him scanned just to make sure.  This worries me of course, but it’s better safe than sorry, and better to know more so we can prepare and work with what we know.  Overall though, Leo is improving on his sitting, he’s able to sit tripod style for about 5 minutes on his own now.  His side sitting is getting better too and I can let go for maybe 15-30 seconds or so before he starts to tip over.  He is babbling a lot more and says “mmm” a lot, I’m pretty sure he’s trying to say “mama” =).   The physical therapist also tried some musical therapy to help him concentrate during therapy.  Sometimes he’ll try to resist and fight her, and so she played some therapeutic rhythmic drumming music, and it instantly calmed him  down, and he was able to do the task at hand, and even sit up on a box all by himself for about a minute!!  Plus, doesn’t he look so cute with those headphones?  So now I will add 30 minutes of rhythmic music to his daily therapy, it’s suppose to help the brain develop too.  Overall, he is making baby step progresses, which is also good.  The therapist said, once he learns a skill, he can’t regress, so it’s just a constant forward moving action, so that’s very encourage.  Keep it up my little prince, mommy is so proud of you!!  I love you to pieces!!

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Lily doing Private Penguin Pose

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Lily chopping apples for salad

Lily is so wonderful, spunky, sassy, smart, funny, and amazing.  She continues to shower her baby brother with love and attention and likes to keep an eye on him for me when I need to shower or do things around the house.  She is also my little sous chef, and loves to help me chop whisk and prep for dinner.  She really likes to go shopping now and would always pick something out for me and then look for something for herself.  She is a addicted to candy, she has a major sweets tooth, got that in her blood from her mommy…haha.  She really likes to eat fish, shrimp, cheese, bread, eggs, tofu, noodles, broccoli, peas, string beans, carrots, and steak!  She loves to snack on potato chips, cheesy popcorn (Pirate’s Booty), and peanuts.  Lily also went to the dentist this past weekend and actually let the dentist count and check her teeth for the first time, and she did so well!  When he asked her to open her mouth bigger, she listened and did it, so good Lily!  No tears or anything!  She has 10 teeth on top and 10 teeth on the bottom, and he said they all look straight and good!  Woohoo, good job Lily!  Amazing too since she eats sooo much candy!  Lily loves to help me water the plants and plant succulents in my balcony garden, and she also likes to help Leo read books.  She even grabbed his hand to help him feel the textures on the pages and help him turn the page all on her own too, because she sees me doing it, so she does it now too.  It’s so sweet and heart warming to see her do those things!  I’m so proud of you Lily, I love you soooo much!  You light up my life, I cannot be more lucky to have you at my baby girl!!

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Trying on hats at the mall

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Lily makes all sorts of chocolates!

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Lily helping Leo feel the textures on the book.

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Lily with her best friend Zoey putting soil into reusable k-cups at school!

Check out some videos of Leo!