Monthly Archives: June 2015
Leo’s Update
“The greatest battle is not physical but psychological. The demons telling us to give up when we push ourselves to the limit can never be silence for good. They must always be answered by the quiet, the steady dignity that simply refuses to give in. Courage. We all suffer. Keep going.” – Graeme Fife
For Leo’s first week of life, he suddenly stopped feeding on his own and had to gavage feed since he wouldn’t take the bottle. He would be wide awake and alert but after we do his mouth and gum massage, we would put the bottle in his mouth and he wouldn’t nipple and would just spit out the milk. He was having a lot of emesis (vomiting) and so we thought maybe the acid from the vomit was causing irritation in his esophagus. So they doctors put him on medication, Prevacid, once a day to help with the reflux. They said it should take about 3 days to take into effect. For the next few days, Leo continued to not feed on his own and he started to lose weight. He was able to gain up to 5 pounds 8 ounces but then went down to 5 pounds 2 ounces in a few days. He was also having a lot of residuals (food that didn’t get digested yet) in his stomach, almost half his feedings, so they would subtract that amount from the full amount of milk he needed to take in the next feeding, and feed him the remainder. That also caused him to lose weight since he wasn’t getting the daily minimum amount of calories needed. To compensate for that, they changed his formula to a higher calorie formula to 24 Cal instead of 22 Cal. They also expanded his gavage time to 90 minutes to give him more time to digest his food, but he still continue to have emesis with almost each feeding. It’s painful to watch him gag and throw up with each feeding. I feel helpless being unable to stop the vomiting from happening and stop the pain he’s feeling. They also redid his hearing test and he passed in th
e right ear but failed the left ear so he will have to have a consultation to retest his hearing in a couple months. A couple days before being 2 weeks old, he got a blocked tear duct in his right eye as well, but it looks worse than it is. We just have to massage the tear duct to drain it out and occasionally wipe the mucus off and it will clear up in a few days. My poor baby just can’t catch a break. Also, since he hasnt improved all week, a GI Specialist from CHOC (Children’s Hospital of Orange County) decided that it would be best to have him transfer to Choc where they can have a feeding team work with him 6 days a week (rather than 2-3 times a week with the occupational therapist at Hoag) and have a little surgery to put a peg/g tube (percutaneous endoscopic gastrostom or gastrostomy tube) in him to help him feed longer term, especially for supplemental feedings at home in place of the ng tube (nasogastric tube/nose feeding tube). My poor Leo, he’s going through so much right now, but he is such a trooper.
Leo 2 Weeks Old
On the morning of June 21st, I got a call saying they want to transfer Leo to Choc that day so that he can have the whole day to settle in and get comfortable at Choc before they do all the tests and scans on him on Monday. The transportation crew from Choc arrived around noon, which was right at one of his feeding times, and so they strapped him into his intense travel pod and took him into the cute Choc ambulance and carefully drove him over to Choc. We thought they were going to gavage feed him during the drive over to Choc, but they didn’t, so poor Leo was so upset and unhappy by the time he got to Choc because he was so hungry. By the time he got settled into his new bed and got situated, it was about 2 hours past his feeding time, so poor Leo was starving and it took some time to finally get him to calm down. My poor Leo! By that evening though, he was comfortable again and back to his laid back, calm, cute sleepy self. We will miss Hoag but we know he will have wonderful care and be in great hands at Choc.
It’s really sad and heartbreaking to see my baby in pain and unhappy. It’s stressful and saddening too to come into the NICU everyday and not hear any good news, but keep hearing things are getting “worse” and not improving. The thing parents do most besides loving their children is worry. I worry if he will be ok and worry if he doesn’t improve, but then I just try to keep hoping that he does get better it’s just a matter of when. I’m so tired from all the stress and worry, but that’s all that’s been on my mind 24/7. I’ve lost so much weight from it, and I feel guilty for getting more than 6 hours of sleep because I feel like I should be awake at least every 3 hours and be with my baby to take care of him, change his diaper, feed him, cuddle with him, and just be there for him. I feel unhappy and sad because I just want the best for my baby but there’s not much I can do besides wait and be there for him, and be there with him during this whole journey. I feel helpless not being able to do much else. However, I know that I’m still recovering, so I have to force myself to take it easy, otherwise I’d be useless to my baby boy. It’s a lot of emotional conflicts going on during this tough time, but I’m trying my best to do the best thing for Leo, and for myself and my family. The one thing that will make Leo’s move to Choc harder is that they don’t have the live stream cameras. So that will be very tough since I won’t be able to see him whenever I want. My patience has been tested for so long but I just have to keep on waiting because my little Leo is doing the best he can and that’s all that matters. It does help to go see him and hold his little hand and let him know that I’m right there with him, and that we will get through this together. I’m his biggest fan and cheerleader, I know he can do it! You can do it Leo!
Progress at CHOC: On Monday June 22nd, they did some examinations on him and a GI specialist decided to plan to put a gtube in him some time end of the week. The GI specialist also wanted to put Leo back on the reflux medication, Prevacid, but up the dosage and give it him twice a day. They said it will take more time to truly see the effects of it so they want to continue with the medication and see how it goes. A feeding therapist started to work with him. To my surprise, he started to nipple the bottle and drank about half of his bottle for the first time in about a week! That’s such an amazing step forward and I was so excited and proud of my little prince Leo! They gavaged the rest of his feedings that day just so that they don’t push him too hard, but he didn’t have any emesis since the day before too, so that’s also a good sign that things are getting better. Leo also had to get an Upper GI X-Ray scan, where they feed him this solid substance and watch how it goes into his system. Once again, they scheduled the x-ray when about an hour after this next feeding time, but he had to wait till the x-ray was completed before he can eat since he needed to have an empty stomach for the x-ray. We waited for almost 2 hours before the transport guy finally came up to transport Leo to the x-ray room so you can imagine how hungry he was getting. When we finally go him onto the x-ray table, he didn’t like it even more since we had to unswaddle him and pin down his arms and legs to take the x-ray pictures. I had to help 2 other nurses hold him down, and watched him cry his poor little eyes out because he did not like that. It was painful to see him so unhappy like that but it was over within 5 minutes and we quickly wrapped him up and put him back in the transport incubator and he was happy temporarily until he realized he was still hungry. Once he got gavaged, he finally settled down and was calm again. His x-ray results came back normal, thank goodness! Also, he is much more alert now and I can just stare into his beautiful round eyes for days!
The next day on Tuesday, I got a call from his geneticist saying his chromosome macro array test results came back and it just confirmed that he does indeed have tetrasomy 18p. I knew the test wouldn’t say anything different but I guess the geneticist wanted to really confirm his condition because he didn’t show any signs of chromosome problems besides the feeding issue. So at least we know for certain, but that doesn’t really change anything for me. He is still my sweet, perfect little baby boy and this feeding issue is just a battle he will win and soon enough, he’ll be able to come home and start many adventures together. I did get a wonderful news that morning and it’s that he drank his entire bottle all on his own at the 5am feeding!! I cannot believe how drastic he improved in such a short amount of time! From the rest of the feedings he drank more than half of his bottle on his own, and finished another bottle in his late night feeding!! Just look at his smile and his cute little content face! His smile just lifts up my heart and fills it with so much happiness! For the next few days he continues to nipple more than half of each bottle and would complete an entire bottle maybe 2-4 times a day! By the end of the week, he would finish almost every bottle except for maybe one or two feedings, mostly because he would just poop out from working so hard and he would fall asleep. I suggested to the GI Specialist if maybe we should put him on the regular flow nipple since the slow flow nipple might be making him work too hard and so he falls asleep. He thought that was a good idea and will run it by the feeding therapist team and see what they say. The GI Specialist said that Leo probably won’t need to get the gtube anymore, and that if he completes all his feedings 100% for 24 hours, then we can remove the ng tube! Such wonderful news!! I’m so happy and super proud of my precious Leo!!!
Leo got upgraded to a quieter room at Choc, so now he’s in room 210 instead of 208, and it’s suppose to provide a more “homier” environment. They moved him due to staffing reasons, whatever that means, but this is nicer because it’s more quiet. Also, there’s windows in this room for natural lighting, which I think will make him happier overall, and there’s recliner chairs (a plus for me!) and the pillows are fluffier haha, yes that makes a big difference to me (and him I’m sure)! Leo has been doing so well in the past few days, and now weighs 5lbs 7oz. He hasn’t thrown up since Sunday too! He really makes me so happy. It’s been tough trying to be strong and attentive to Lily, since she still needs me too, while trying to be strong and solid for Leo. It’s a tough balance to juggle because Lily is so intuitive and smart that she knows Leo is “sick” and has to stay at the “doctor’s”. When I’m sad, I try not to cry in front of her or show my sadness to her but she can sense it and will ask me why I’m sad. I just want our baby Leo to be home with us. Overall though, with Leo’s amazing progress, I feel like I can slowly breathe again and I notice that I am indeed happier and genuinely smile more as well. When my babies are happy, I am happy. I think that’s just how life as a parent works. Trying to be positive and hopeful is really hard to do especially when things have been so challenging, but all the good vibes and happy positive thoughts are definitely paying off. It also definitely helps at all our family and friends are wishing him the best of luck and sending him good vibes and prayers as well so thank you everyone for that! I’m hoping Leo will be able to come home sometime next week. He just needs to be able to feed on his own and they’ll do a final examination and hope he passes everything! My precious Leo, your courage and bravery and perseverance through this tough time is inspiring and is giving me the courage and strength to be strong and happy for you. Your love keeps me going, and I know you will be coming home soon!
Here is a video of Leo (18 days old) being so alert! I’m so proud of you my little prince Leo. I love you so much my little Leo!
Keep on fighting, you will be home soon my littlest love!
Happy 3rd Birthday Lily!
Happy 3rd Birthday to my sweet wonderful Lily pad! Lily weighs 27 pounds (only gained 4 pounds this entire year) and is 37 inches tall, both in the 13th percentile range. Her hemoglobin levels dropped from last year down to 11.3, on the low side so she needs to have more iron intake, more fish it is!! Haha. There’s actually a lot of foods rich in iron like red meats, pork, poultry, seafood, beans, dark leafy greens, dried fruits, and certain cereals breads and pastas! She pretty much just needs to eat more in general, but she’s so energetic she just runs around and burns it all off. Less play, more eating Lily haha! She’s small for her age but definitely big in personality and maturity. She’s so smart, spunky, and sassy and is constantly surprising us with her level of understanding and awareness of our world. (Thank you so much Mieng for these beautiful pictures of my Lily pad!!)
A couple weekends before her birthday, we had a small lunch at Favori with both of our immediate families to celebrate Lily’s birthday since we didn’t throw Lily a party this year. Then on her birthday weekend, we took her Balboa beach where there is this nice little playground on the sand that Lily likes to play at. She loves to climb up the ladders now and go down the big kid’s swirly slide and repeat those things all day long! She also likes to look at the water and run towards it and away from it, over and over again. Digging in the sand for hidden treasures is also a favorite beach activity of hers and pointing out all the seagulls and birds that fly by as well.
As you all know, Lily’s little brother Leo made his special and amazing arrival the day before her birthday. So unfortunately we couldn’t continue her birthday weekend as planned, but I still wanted to make sure I do something special on her actual birthday. I told Khoa to bring some presents that I had for her to the hospital, to let her open and I also made her a cake that is her favorite by far! She doesn’t really eat cake or cupcakes much, so I decided to fill a glass with her favorite sweets, crispy M&Ms, skittles, and red vines and stuck a sparkly candle on top! I’m pretty sure the hospital would not approve of the open flames…but we did it quick so they don’t know, and we were safe about it haha. Plus, Lily LOVED it and that made me super happy. Her face lit up when she saw the bowl of candy and she was even more excited when she saw how sparkly the candle was! So that was a big success!
Thank you to everyone who sent her birthday presents as well! I’m so touched by everyone who took the time to remember Lily’s birthday and shower her with love even though you can’t be here in person to see her and celebrate with her. This birthday is special, not just because she got a new baby brother!! So it was very important to me to make sure to make her feel loved and special even though there’s this new amazing change in all our lives. So thank you everyone for helping me make her feel special. I know it’s just presents, but to a little 3 year old, it’s much more than that.
We had a special celebration at LePort for Lily’s birthday as well, and we brought in fruit filled cookies from Trader Joe’s and cut up some strawberries for the kids for the special snack. I also bought some minion themed party favors to pass out to the kids as well since Lily loves minions right now! I bought plastic favor cups, bubble wands, super bouncy balls, stickers, and organic fruit snacks. I made thank you favor tags as well and tied them to the bubble wands with yellow ribbon to complete the package! Lily and her friends loved them! It was really cute and impressive to watch Lily set up the table for snack time and sit at the table and eat her snacks so well. She was so good at cleaning up after herself and then saying goodbye to us without a fight! I was so impressed with her maturity, it made me proud and also a little emotional that she’s growing up so fast.
I cannot believe my precious Lily pad is now 3 years old! Seeing my Lily pad happy makes me so happy, and knowing that I was a part of making her happy, just makes me feel so wonderful inside. I feel like she’s so smart and advance for a three year old, she speaks so well with multiple complete sentences and has such a wide range of vocabulary. She is so observant of her surroundings and is so intuitive to emotions as well. She’s majorly sweet and is a naturally caring and nurturing person, proven by the way she treats her baby brother Leo. I cannot be more proud of my Lily pad and I look forward to watching her continue to grow into such a beautiful lady, both inside and out. I love you soooo much Lily, you light up my life, you make me and your daddy so happy, you are so amazing and beautiful, you are everything worth living for my love. Happy 3rd Birthday my precious Lily pad!! You can see more pictures from Lily’s birthday festivities HERE! Below is also a video I made of some fun happy silly loving moments with Lily in the past year!! Enjoy!
Our Little Prince Leo Has Arrived!
After such a long journey, our precious sweet little prince Leo Dinh Ngo is finally here on June 7, 2015, at 4:59pm, weighing 5 lbs 5 oz, and measures 18 inches long! Once again, this entry will document my whole labor experience, so if you don’t want to know the details, then just enjoy the pictures, and don’t worry about the text. After all, this blog is for Leo to read one day, so for us to reminisce on our adventures together!
After experiencing 3 false alarms, I decided to wait it out a little longer before going into the hospital, since I really did not want to be sent home again if the contractions decided to ease off (or Leo decided it was too comfy in my belly and didn’t want to come out). I started to get pretty consistent contractions around midnight of June 7th, and so I started to track them on my phone with a contractions tracking app. After 2 hours of tracking, they were consistently happening every 7-10 minutes sometimes 4-5 minutes too. I was still worried they would stop being consistent so I stuck it out for another hour but I told Khoa to get ready because I feel (and hoped) that this would be the real deal. So finally after 3.5 hours of tracking, I decided to go. We got to the hospital around 4am, with Lily, and we got settled in and they tracked me for an hour. My last appointment with my OB showed that I was 3cm dilated, but when I got to the hospital, the on call doctor said I was only 2cm dilated. You can’t go backwards but I guess the hospital doctor was more strict with her measurements…who knows. So by the end of the hour, she said I’m close to 3cm, so because I showed progress and I had consistent contractions, they finally decided that I’m indeed in labor!! Finally!!
We got admitted to our labor and deliver room, and Lily was really sweet and kept popping her head up from the pull out bed that she was laying on with Khoa, and would just look at me with concerning eyes, to make sure that I was ok. She’s such a sweetheart. Soon enough, her and Khoa fell asleep, and I eventually went to sleep for a bit too. The nurses would come in now and then to see if I needed anything and asked if the pain level increased or anything. The contractions definitely became more frequent, but they didn’t really get more painful, and so it was just a waiting game. Around 11am, they broke my water and that must be the most unpleasant part of this whole labor experience in my opinion haha. So after they broke my water, the contractions actually started to slow down! That was really strange, so they nurse gave me pitocin to increase my contractions, and eventually that worked and the contractions definitely started to get more painful and I finally asked for the epidural around 2pm. At that point I still measured 3cm, they noticed that Leo’s heart rate would decrease every time I get a contraction, but they said it was a variable decrease in heart rate so they had a feeling that his umbilical cord was wrapped around his neck. So they had to do an anmio transfusion and put some fluids back into me so relax the cord to take pressure off his neck. How scary does that sound?? The nurses and doctor seemed pretty casual about the whole thing so it must have been a common thing so that helped me not freak out… They also made me wear an oxygen mask, like with Lily too, to help increase oxygen flow to Leo as well.
By 3:30ish, I felt like I could feel the tightening of my stomach, like as if I can feel the contractions again, so I told the nurse and she gave me another small dosage of the epidural. However, around 4ish, I felt like I can feel the contractions again but a little stronger this time. The nurses didn’t want to give me more epidural in case I get too numb and can’t push, but they said that I shouldn’t be feeling the contractions and that it should only be pressure. However, I know my body and what I was feeling was not just pressure and turns out, it was my body getting ready and to push Leo out! 
So the doctor checked and I was already 9.5cm! She asked me to give a test push and what do you know, she said it’s time to push for real! So she called all the staff members that need to be there for when Leo’s here so they can all be ready to examine Leo and get ready for his care. There were at least 8 doctors and nurses from various departments, so many people all ready to take care of our Leo! Once everyone arrived, the doctor told me to start pushing when the first contraction came. So I did and one of the nurses thought maybe Leo will be here on the 2nd contraction but the doctor said “nope, he’s here now!” and I looked at Khoa with an expression on my face like “is that true?” since I can’t see anything down there, and next thing I knew, they were handing me Leo to hold! My Leo, my rainbow baby, you are finally here in my arms!!
I could not believe how quick that was, it must have been about a minute! I was in more disbelief that our precious Leo is finally here and that I’m holding him in my arms and I can hear his beautiful cry of life. Tears of joy started streaming down my face as I cried with my Leo. My heart was filled with so much joy and happiness. I’ve been waiting for this day for almost 2 years now and after the crazy roller coaster we’ve been on to end, so that we can start a new adventure that included our Leo, and finally the wait is over. It was such a blur; I remember people checking him, listening to his heart while I’m holding him and looking into his eyes and ears and then Khoa cutting the cord and then they quickly take him aside for a couple mins for further examination and then they handed him right back to me. They told me they’ll let me have my golden hour with him and then they will bring him to NICU for further examination, testings, and care. So for a whole hour, it was in eternal bliss. I just held my Leo close, skin to skin, and savored each breathe he took, absorbed his warmth, lost myself in his little baby noises, and counted my lucky stars for having this special day.
Eventually I got moved to my recovery room, which happened to be on the same floor as the NICU, so Leo was only 50 feet away from me across the hall. Before I did that, I got some presents ahead of time, and surprised Lily with them in our room, and told her that these are presents from her new baby brother Leo! So she said “from Leo? Oh thank you!” She loved it all and started to draw in the notepad and play with the snap bracelet and the minion flash light glow toy too. I wanted to do this for her so that she can feel special and loved even while all this stuff is happening with Leo, I want this to be a fun event for her so that she doesn’t get jealous of her new brother. So far I think it’s working! Once I got settled to my room, I got to visit Leo in NICU. They had him all nice and cozy in his incubator since his body temperature was a little low. They told us that he had his first feeding (he drinks a higher calorie formula called 22 Calorie Enfamil) and that he took the bottle all by himself too! That was a major surprise and amazing news since we were expecting him to have feeding issues and would require a feeding tube since 41/42 babies with tetrasomy 18p had that problem. I guess our Leo is just such a strong fight that he’s 
the 1 baby out of 42 that beat the odds! I was so proud of my son and that was just the icing on the cake for me. Even though he was in NICU, they provide the homiest environment for the babies, so I was still able to take him out and hold him whenever I want and he definitely looked very happy and comfortable. On the 2nd night at the hospital, since Leo was doing so well with his feedings, they let him stay in our room. I was so excited and Lily was super excited as well! She insisted on helping with his feeding and at one point told me to let go of the bottle because she “got it” haha.
Of course the last night of our stay, we had a nice celebratory dinner and I kept a bottle of the apple cider to drink when Leo turns 1 years old! I did this with Lily and it’s cute to see how huge the bottle was when she was born and then how it looks like a normal size bottle to her a whole year later! I can’t wait to do this for Leo. It’s silly and small but it’s fun =). Also, thank you to everyone who sent us flowers, balloons, drinks, snacks, and gifts for Leo and for everyone who took the time to come out and visit me and Leo at the hospital. The flowers and balloons really helped make my room that much brighter and made me feel really special and loved. I know Newport Beach is not very convenient for a lot of people, so it means a great deal to us and we are truly touched by all the love and support that we have received. We also really appreciate all the phone calls and messages as well! I got discharged the next day, but we found out that since Leo’s feeding on his own started to decrease, he had to go back to NICU and get a feeding tube to help him get the nutrients he needs to grow. We were disappointed due to the emotional roller coaster we’ve been on throughout this journey, but we only want what is best for him and whatever care he needs, we want him to have it. However, it was very saddening to be wheeled out of the hospital without my precious Leo in my arms, but I know that he will be in great hands in NICU and he will come home when he’s well and ready. 
Leo’s Progress: He had a bunch a tests done, a heart ultrasound, renal ultrasound to measure his kidneys, hearing test, head scan, scrotal ultrasound, and a macro array chromosome test. Most of the tests came back normal with nothing major to worry about. The renal ultrasound showed fluid in his kidneys but there are no obstructions and the kidneys function normally so we just need to do a follow up ultrasound in a few weeks. Normally people don’t do renal ultrasounds on newborns because organs are still developing so you normally wouldn’t see a completely normal renal ultrasound anyways. Leo failed his hearing test but they feel that it could be due to fluids in his ear, so they taught me how to massage his ear and stroke his face to draw out the fluids from his ears. He will be retested soon. We are still waiting for the results for the macro array chromosome test and that usually takes about 2 weeks to get the results back. All that being said, we are super thrilled that nothing major is found and that our Leo is physically great! His stomach is still on the small side but other than that, he is exceeding all out expectations and I cannot be more proud of him.
On day 4, Leo weighed 5lb 1oz, which is borderline to the 10% maximum of normal weight loss. So whenever Leo doesn’t finish his required amount of milk his feeding, they will gavage (getting the formula to his stomach directly through the tube) the rest of his formula. The occupational therapist taught us how to massage Leo’s mouth and gums to get him to nipple the bottle better, and to loosen his jaw cause she said it was really tight. It really helped and for a couple days, he was doing so well and would finish most of his feedings. He would drink enough cumulatively for that day that he didn’t need to gavage any of his feedings. He did often get really sleepy halfway through or near the end of the feeding and we would have to burp him or unwrap him to wake him up to finish his feeding. Each new day/shift, he would get an increase in the minimum amount of milk he would need to take. When it finally got to a minimum of 45cc per feeding, he suddenly started to slow down on his feeds and not complete them, and they would have to gavage the rest of his feedings. Before when he had a minimum of 35cc, he would sometimes go above and beyond and finish up to 45cc! All of a sudden, he can barely finish 25cc out of 45cc, and he’s been throwing up at each feedings for a whole day now. He would be wide awake but he just won’t nipple the bottle. The nurses and doctors say that his is due to the tetrasomy 18p and that feeding issues was a huge part of this. I don’t understand why he was doing so well and now he’s not, but they told me that sometimes you have to get worse to get better. He went from 97% of completing his daily feedings to 77%, to 55% to maybe 10-20%. Leo has a smaller stomach too, so they feel that the increase in volume is too much for him and so that’s why he throws up. So for now they’re only going to gavage his feedings, slowly in a span of an hour, to see how he takes it, allowing his stomach to digest the milk and make room for more, so that he doesn’t throw it up. Then we will work on getting him to nipple again. It will be a long journey, but I know he can get through it.
Leo 1 Week Old
It’s very hard to keep it together and to stay strong for my little boy because this whole process has been an emotional roller coaster for all of us, and I feel very overwhelmed at time but these emotions. Every time I see great progress, I get an immense amount of hope that goes along with it, hoping he will be able to come home soon and explore this great big world together with us. However, when we start to see set backs, it’s saddening only because I want my little Leo to be okay, and I worry like any other mother would worry, about the well being of my boy. The last couple days it seems like his feeding abilities have been getting “worse”, but it’s not his fault at all. I know he is doing the best he can, and he just needs more time to reach the light at the end of the tunnel. All we can do is wait for him to let us know what he is capable of, and be patient and encouraging along the way. My little Leo has already beat so many odds to get to where he is now. If we didn’t know his diagnosis, he would be like any other baby, but with the struggle of feeding, which is not a big deal at all in the grand scheme of things. After every storm, there is a rainbow of hope, my Leo, my rainbow baby. Overall he is healthy and I’m able to hold him close, feel the warmth of his body, listen to his cute little voice, and look into his brilliant bright eyes. Even though things have been rough, just being able to be with my Leo makes me happy. He will have a long journey in NICU, but he will be in the best of care, and I cannot be more grateful to all his nurses and doctors there. I am eager to have him home, but only when he is ready. I miss him terribly when we are apart but luckily there’s a live stream camera that allows us to check on him whenever we want, so that helps a lot!
Here is a super sweet and cute video of Lily being such an amazingly loving big sister to her baby brother Leo! She impresses me so much with her gentle compassion and it just fills my heart with so much love to see her so nurturing and caring to her baby brother. I love my babies so much, you both are so amazing!
Stay strong my brave little Leo. We love you so much and I know you are doing the very best you can! No matter how long the rain lasts, there will be a rainbow in the end. No matter how sad you may be, believe, that happiness is waiting. Leo, you are my rainbow, but you shine brighter that all the colors in the world. We will eagerly, yet patiently wait for your homecoming!
